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Family Stories
Little Sparks.
Big Impact.
Behind every donation is a child, a family, and a story of strength. At Little Sparks Project, we partner with families facing rare and complex diagnoses—providing critical financial support when it’s needed most. These stories are windows into their journeys: moments of hope, resilience, and the life-changing difference your generosity makes.
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At a certain point, we felt as though we were drowning in all the unforeseen costs. The grant we received from LSP was nothing short of a timely, life-saving miracle.
Our family was connected with Little Sparks while our daughter was admitted into the NICU shortly after her birth in January, 2024.
She was born with a rare condition called Pierre-Robin Sequence (PRS) and spent the first two months of her life in the NICU. Because of many life-threatening breathing complications, she required round-the-clock care and multiple surgeries to clear her airway and track her growth and development.
Before receiving help from LSP, we were inundated with financial pressure to provide our daughter with the proper medical care she needed, while absorbing many other costs associated with being a family with a child who needed long-term inpatient care.
With the generous grant LSP provided, we were able to cover our large medical deductible (something we hadn’t anticipated needing prior to her birth), subsidize the increased childcare costs for our other two children, and paid for various rideshares and meals.
We were wrapped up in fear. Fear for our finances, fear for his future. Thankfully, we now have a community within the Little Sparks Project to turn to.
A few years ago, I got a fortune cookie that read “People will show up for you when you need them most”. I had no idea what that meant, but it did stick in my brain. Unfortunately, I’ve had the misfortune of finding out what that meant when my son was diagnosed with a rare congenital heart defect called Tetralogy of Fallot. This would require open heart surgery shortly after his birth.
I was told that my son would need to get over this one hurdle and that he’d live a normal life. He made it through his planned open heart surgery at just 2.5 months old.
A little over a year later, Logan became very ill again. He was very sleepy and throwing up but didn’t appear to have any other viral symptoms. By bedtime I had made the decision that I wanted to go to the hospital because I feared something was wrong. I was told that Logan would have to go back to the OR immediately (again). Cue hysterics. My baby had to go through this painful experience again. Another major surgery in just one short year of life.
He did well for about the first week after his surgery. But he reached a point where he plateaued, he didn’t make much progress. We were forced to wait 4 weeks in the hospital before he had to go back to the OR for yet another surgery.
Our son has been through a lot. We’ve felt so isolated in our experiences. These situations seem straight forward, but every hospitalization has come at a cost. We’ve had to advocate HARD for our son.
Once we were home, we received information about Little Sparks Project. We learned that it’s a community; that it’s not only there to help financially, but that it’s also there as a line of support to families going through medically taxing experiences.
As we process the events from the last couple of years, the one thing that sticks in my head is thank God for those people that showed up when we needed them most. We were wrapped up in fear. Fear for our finances, fear for his future. Thankfully, we now have a community within the Little Sparks Project to turn to.
